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Caring for the Caregiver

Today marks day 4 of no caregiving duties. My son was chosen as a 2023 delegate for the Missouri Youth Leadership Forum (MYLF) through the MO Governor’s Council on Disability. ⁣We dropped him off at the University of Missouri-Columbia to stay on campus for 5...

Run Your Own Race

This week, Amy interviewed Jennifer Dukes Lee on the podcast. If you haven’t listened to it – put it in your queue – it’s really good. Jennifer tells her story of how she has often measured success by the boxes that are checked, the things accomplished...

Running Triage: A Note From Carrie

Happy summer. Although, if you live in the Midwest, we’ve almost been running our heat in the last few weeks. It’s been so cold. My son has spent a lot of time in the emergency room, and as a result of his tracheostomy, we’ve often bypassed (much to the chagrin of...

Tips for Summer Break 

It is finally summer! Does that fill you with joy, dread, or a little bit of both? When my kids were younger, I would approach the coming summer break with apprehension. When I heard other moms looking forward to the lazy summer days, fun activities, family vacations,...

Terrifying Transitions for Special Needs Families

Hello friend!  Oh, summer – what mixed feelings I have for you. Summer tends to be a time most get to take a deep breath, plan vacations, visit relatives, work on tans, participate in traveling sports teams, open up lake houses, take out their boats, or plan...

Savor the Small Moments

This past Saturday, I stood in the cool green grass and took pictures of my daughter and her prom date. She looked beautiful. It was an ordinary moment in a not-so-ordinary life. It was a mother-daughter moment that I do not get very often, a moment when I could see...